First we recommend you join our online facebook group to connect with others that have EDS/HSD. Once you join, you are able to ask the group your personal questions about symptoms in a safe, caring, and understanding environment. Based on our own experiences, we are able to find similarities between our symptoms to point you into the direction of providers who may be able to help and diagnose you. We are not medical professionals so we cannot diagnose you or give you medical advice but we are all happy to share our personal experiences.
Below is a collection of information/resources we have gathered over the years. These are provided for informational purposes only, we recommend you talk and work with your doctors if any of these resources relate to things you are dealing with.Â
If there is an area you have questions on or we are not covering, please Contact Us and we will see what we can do for you. Take a look at our list of outside resources to assist you in learning more about these conditions.
EDS comes with all sorts of comorbid conditions and EDS impacts all parts of the body. Search our community's list of providers to find individuals we, as a group, have recommended to each other. This document is broken up by specialty.