It is extremely important for providers to educate themselves on Ehlers Danlos Syndrome. The Ehlers Danlos Society offers the EDS ECHO Programs & Courses for Healthcare Professionals which helps providers across all disciplines improve their ability to care for EDS patients. We recommend all providers be made aware of the programs that are available through the Ehlers Danlos Society.
If you are a patient, please print this brochure and provide it to your providers to raise awareness on how they can become better informed.
The Ehlers Danlos Support UK offers this toolkit for providers: https://gptoolkit.ehlers-danlos.org/
This is a collection of resources that could be utilized by a provider as tools or references for their practice or to compile a resource list for patients. This is not a comprehensive or medically vetted list.
This document was put together as a Professional Reference Sheet for Personal Trainers & Fitness Instructors.