Outside Resources

The Ehlers-Danlos Society – Main Information Hub: https://www.ehlers-danlos.com/

What Are the Ehlers-Danlos Syndromes?: https://www.ehlers-danlos.com/what-is-eds/

Hypermobility Spectrum Disorders (HSD): https://www.ehlers-danlos.com/hsd/

Understanding VEDS and other related : https://marfan.org/conditions/

2017 International Diagnostic Criteria (Clinician reference): https://www.ehlers-danlos.com/2017-eds-classification/

EDS and Hypermobility Lectures, Documents, and Handouts: https://webspace.clarkson.edu/~lrussek/hsd.html

EDS & HSD GP / Clinician Toolkit (Give to your doctor): https://gptoolkit.ehlers-danlos.org/

The Mast Cell Disease Society: https://tmsforacure.org/overview/

Dysautonomia International: https://www.dysautonomiainternational.org/page.php?ID=30

Bobby Jones Chiari & Syringomyelia Foundation : https://bobbyjonescsf.org/

Our Local Group: Ehlers-Danlos Support Group of Southern Maryland

The EDS Society's Support Group and Charity Directory: https://www.ehlers-danlos.com/support-groups-and-charity-directory/