Embedded Files
The documents below are for informational purposes. They have been given to members of our group from different providers over the years so they could educate themselves. Members work with their providers on finding what approaches are good for them and their symptoms. No two zebras are a like so what helps one may hurt others. We recommend you work with your providers to find what is right for you. These are provided only to educate. We have them broken apart into sections to help you navigate the list better.
Autism
Autism
EDS and autism editorial.docxEDS and Autism Editorial
EDS and autism.pdfRelationship between Autism and EDS
Chronic Fatigue
Chronic Fatigue
Chronic-Fatigue-in-hEDS-HSD-Nonexpert-2019-12c.pdfChronic Fatigue in EDS
Dental
Dental
Oral-and-Mandibular-Manifestations-in-EDS-Nonexpert-S.pdfOral and Mandibular Manifestations in EDS
Oral Health and EDS.docxOral and Dental Implications of EDS
Diet
Diet
diet and hypermobility.docxEDS Diet
Lactose Intolerance.pdfLactose Intolerance
Magnesium-and-Ehlers-Danlos-Syndrome.pdfMagnesium and EDS
Ears/Nose/Throat
Ears/Nose/Throat
salivary gland blockage and EDS.docxSalivary Gland Blockage
Speech, language, and swallowing in EDS.docxSpeech, Language, Voice, Swallowing
Foot
Foot
Footcare in hypermobile Ehlers.docxFootcare in EDS
Gastrointestinal
Gastrointestinal
Gastrointestinal problems in hypermobile Ehlers.docxGastrointestinal Problems in EDS
Gynecology
Gynecology
EDS and GYN issues.pdfOB/GYN and EDS
Menstrual Problems Common in Girls with EDS.docxMenstrual Problems
EDS and menopause.docxMenopause
hormone replacement therapy and EDS.docxHormone Replacement Therapy
MCAS/Histamine Intolerance
MCAS/Histamine Intolerance
A number of individuals with EDS/HSD also have Mast Cell Activation Syndrome. Some individuals with MCAS may feel like they are allergic to everything and very sensitive. You can start your journey to learn more about Mast Cells by visiting The Mast Cell Disease Society.
Mast Cell Activation living with.docxLiving with Mast Cell Disease
Mast-Cell-Disorders-in-EDS-Nonexpert-S.pdfMast Cell Disorders in EDS
Mast Cell Activation.docxMast Cell Activation Syndrome
Mast Cell symtoms by organ system.docxMCAS symptoms by organ system
Mast Cell Activation Syndrome and neurological symptoms.docxNeurological Symptoms of MCAS
Mast Cell and Bowel Prep.docxGI Scoping in MCAS
Mast Cell Activation and probiotics.docxMCAS and Probiotics
Mast-Cell-Activation-Syndrome-June-2020.pdfGI and MCAS
Mast Cell and chronic fatigue.pdfMCAS and Fatigue
Mast cell and interstitial cystitis.docxMCAS and interstitial cystitis
Mast Cell and weight gain.docxMCAS and weight gain
Mast Cells Naturally.docxFight Inflammation to Stabilize Mast Cells
A low histamine diet is regularly suggested by our medical professionals. Our group members have shared these documents they have received at the start of their low histamine diet journey.
histamine food list.pdfLow Histamine Diet
HistamineRestrictedDiet.pdfHistamine and Tyramine Restricted Diet
Mast-Cell-Diet-032019.pdfMCAS Diet
low_histamine_meal_plan.docxThree Low Histamine Recipes
Medications
Medications
EDS and medication managment.docxEDS and Medication Management
Medications contraindicated in Vascular EDS.docxContraindicated Medications in Vascular EDS
Neurology and Spine
Neurology and Spine
Neurological-and-Spinal-Manifestations-of-EDS-Nonexpert-S.pdfNeurological and Spinal Manifestations of EDS
Cervical-Spine-Instability-Ebook-copy.pdfCervical Spine Instability
tethered cord .pdfUnderstanding Tethered Cord Syndrome
Pain Management
Pain Management
EDS and pain management.pdfManagement of Chronic Pain in EDS
EDS trigger point injections.docxTrigger Point Injection
Pain-Management-in-EDS-Nonexpert-S.pdfPain Management in EDS
Physical Therapy
Physical Therapy
Ehlers Exercise and movement for adults with hypermobile Ehlers.docxExercise and Movement for EDS
Ehlers Danlos stratagies to protect joint and physical therapy.docxProtecting Joints
home_modifications.docxHome Modifications and Fall Prevention
isometric neck exercise.pdfIsometric Neck Exercises
EDS and finger exercises.pdfHands and Fingers
Rib Subluxations.docxRib Subluxations
POTS
POTS
Postural Orthostatic Tachycardia Syndrome (POTS) is another common comorbid condition of EDS. POTS is an autonomic nervous system disorder which relates to a very high heart rate and dizziness/fainting when standing.
More information about POTS can be found through the Dysautonomia International website.
Postural Orthostatic Tachycardia Syndrome.docxUnderstanding what POTS is.
Autonomic dysfunction EDS.docxUnderstanding autonomic dysfunction like POTS.
POTS diet.docxDiet suggestions for POTS.
Breathing and POTS.docxHow your breathing may be impacting your POTS.
breathing bio feedback.pdfBiofeedback Therapy and breathing exercises to help regulate the nervous system.
CDM POTS Exercise Protocol.pdfAn exercise protocol to assist with regulating POTS through exercise.
POTS, EDS, Pregnancy.pdfPOTS, EDS, and Pregnancy
vagus nerve stimulation and POTS.pdfVagus Nerve Stimulation to help treat POTS.
Raynaud's
Raynaud's
EDS and Raynauds.docxRaynaud's Phenomenon in EDS
Skin
Skin
skin in hypermobile Ehlers.docxSkin in EDS
Sleep
Sleep
EDS and sleep disturbance.docxSleep Problems in EDS
Vascular Ehlers Danlos Syndrome
Vascular Ehlers Danlos Syndrome
Vascular EDS EDS Network.docxVascular EDS
VEDS-Fact-Sheet.pdfVascular EDS Fact Sheet
Medications contraindicated in Vascular EDS.docxMedication Contraindicated for vEDS
Page updated
Report abuse