The documents below are for informational purposes. They have been given to members of our group from different providers over the years so they could educate themselves. Members work with their providers on finding what approaches are good for them and their symptoms. No two zebras are a like so what helps one may hurt others. We recommend you work with your providers to find what is right for you. These are provided only to educate. We have them broken apart into sections to help you navigate the list better.
EDS and Autism Editorial
Relationship between Autism and EDS
Chronic Fatigue in EDS
Oral and Mandibular Manifestations in EDS
Oral and Dental Implications of EDS
EDS Diet
Lactose Intolerance
Magnesium and EDS
Salivary Gland Blockage
Speech, Language, Voice, Swallowing
Footcare in EDS
Gastrointestinal Problems in EDS
OB/GYN and EDS
Menstrual Problems
Menopause
Hormone Replacement Therapy
A number of individuals with EDS/HSD also have Mast Cell Activation Syndrome. Some individuals with MCAS may feel like they are allergic to everything and very sensitive. You can start your journey to learn more about Mast Cells by visiting The Mast Cell Disease Society.
Living with Mast Cell Disease
Mast Cell Disorders in EDS
Mast Cell Activation Syndrome
MCAS symptoms by organ system
Neurological Symptoms of MCAS
GI Scoping in MCAS
MCAS and Probiotics
GI and MCAS
MCAS and Fatigue
MCAS and interstitial cystitis
MCAS and weight gain
Fight Inflammation to Stabilize Mast Cells
A low histamine diet is regularly suggested by our medical professionals. Our group members have shared these documents they have received at the start of their low histamine diet journey.
Low Histamine Diet
Histamine and Tyramine Restricted Diet
MCAS Diet
Three Low Histamine Recipes
EDS and Medication Management
Contraindicated Medications in Vascular EDS
Neurological and Spinal Manifestations of EDS
Cervical Spine Instability
Understanding Tethered Cord Syndrome
Management of Chronic Pain in EDS
Trigger Point Injection
Pain Management in EDS
Exercise and Movement for EDS
Protecting Joints
Home Modifications and Fall Prevention
Isometric Neck Exercises
Hands and Fingers
Rib Subluxations
Postural Orthostatic Tachycardia Syndrome (POTS) is another common comorbid condition of EDS. POTS is an autonomic nervous system disorder which relates to a very high heart rate and dizziness/fainting when standing.
More information about POTS can be found through the Dysautonomia International website.
Understanding what POTS is.
Understanding autonomic dysfunction like POTS.
Diet suggestions for POTS.
How your breathing may be impacting your POTS.
Biofeedback Therapy and breathing exercises to help regulate the nervous system.
An exercise protocol to assist with regulating POTS through exercise.
POTS, EDS, and Pregnancy
Vagus Nerve Stimulation to help treat POTS.
Raynaud's Phenomenon in EDS
Skin in EDS
Sleep Problems in EDS
Vascular EDS
Vascular EDS Fact Sheet
Medication Contraindicated for vEDS